I wasn’t sure if I would even write this entry at all, or what shape it would take if I did write it, until earlier this morning. Honestly, while we will surely be participating in lighting our house blue during the month of April for Autism Awareness, I was not sure that our constant calls to action were being heard by too many people at all. Yes, some friends and family have been on board, and Amber and I really appreciate their participation and support of Kaitlyn, but I guess maybe I had hoped to reach strangers. It turns out, I just might have. And even if it is only one, that is a start. I was checking my Twitter feed this morning, when someone who follows me (and who I now follow) inquired as to whether or not our Capitol building would be blue again this year; I told her that I was not sure, but that I would try to find out.
Last year, the Light It Up Blue event in front of our Capitol building seemingly came together at the last minute. I only found out about it the day of the event, and I think that is true for the few other people who showed up as well. While we were proud to be there, and we have a copy of the proclamation on our wall at home, Amber and I both wished there had been more people there. Amber started a Facebook campaign to help drive people to petition the White House to participate, and we have gotten quite a few “likes” on the page.
I could not find any information as to what Florida was doing, so I did what any motivated caregiver/dad would do. I started making phone calls. Since our state’s CFO, Jeff Atwater, attended the event last year, I started with his office. As expected, it is next to impossible to talk to anyone on the phone at any level of government, so I resorted to emailing him (you can email him at email@example.com), and also contacting him via Twitter. I am still waiting for a response from his office. Next up, I figured I would try the office of Governor Rick Scott. Same result on the phone, so I emailed him (firstname.lastname@example.org).
And because I am not content with contacting our state government, I also decided to visit the contact section of the White House’s website (here) to fill out their generic form. My message to President Obama was pretty straightforward, and it was my usual request to have the White House participate. I also included that I have now contacted the White House three years running, and yet to even receive a response (and of course, no participation either), and asked that autism would be something they would help raise awareness about (I included a reminder that the White House has gone pink for breast cancer, red for AIDS awareness, and even green for St. Patrick’s Day). I am not going to hold my breath for a response from the White House, or for the White House to be blue on April 2, though.
My sincere hope is that one day, people will at least have a better understanding of autism and those on the spectrum. There is nothing “wrong” with those on the spectrum. I know that an autism diagnosis can be confusing because Kaitlyn confuses and confounds us every day. I also know that Amber and I love her unconditionally, and that there is nothing we would not do for her, because we know that her having Asperger’s will put so many roadblocks in her way as she grows up; we know that some people will never understand her, and that some people will never accept that she does not fit their mold of what they envision for her. We also know that understanding is gained through awareness and education, and when places like our Capitol building, the White House, the Empire State Building, or the Eiffel Tower turn blue, if even for a night, the natural curiosity of people will lead them to learn more about autism and those with autism.
Awareness, however, does not start with those public places. Awareness starts with me, with Amber, and with you. Will you make a difference this April?