Tag Archives: autism

Annual Report

A few weeks ago, we took Kaitlyn for the second part of her annual evaluation with the psychologist.  This was the one-on-one session where he basically interviews her and gets a good idea of how she has progressed or changed since our last visit.  Overall, the visit was about 90 minutes long.

Last week, we received the clinical report (and when I say “clinical,” I mean it very literally.  As usual, the report was filled with “doctor speak,” which we have had translated for us in the past, so we are familiar with it now.).

There were no real surprises in the report at all, and it read pretty much like last year’s did.  Really, the only “change” that was noted was that, according to the DSM-5, Kaitlyn now technically has Level 1 Autism Spectrum Disorder.  After researching what exactly that means (she will “require support”), I concluded that it is just a fancy way of saying she has Asperger’s (because it will be so much easier to tell people, “my daughter has Level 1 Autism Spectrum Disorder” than it was to say, “she has Asperger’s.”  Now, in addition to explaining what her diagnosis means, Amber and I will first have to overcome the blank looks from people trying to comprehend what we meant by “Level 1.”).  Here is what Level 1 is:

Social Communication:  Without supports in place, deficits in social communication cause noticeable impairments. Difficulty initiating social interactions, and clear examples of atypical or unsuccessful response to social overtures of others. May appear to have decreased interest in social interactions. For example, a person who is able to speak in full sentences and engages in communication but whose to- and-fro conversation with others fails, and whose attempts to make friends are odd and typically unsuccessful.

Restricted, repetitive behaviors:Inflexibility of behavior causes significant interference with functioning in one or more contexts. Difficulty switching between activities. Problems of organization and planning hamper independence.

Basically, Level 1 Autism Spectrum Disorder mirrors Asperger’s.

The report did mention that Kaityln probably also has Obsessive Compulsive Disorder (OCD), which made Amber immediately point out (rightfully) that she inherited that from me.

Rolling Right Along

schoolhouse1Kaitlyn brought home her report card for the third nine weeks this week.  We actually got it the day they came out this time, and given the fact that she lost her report card last time, there was a 50/50 chance (at best), that its arrival would be delayed this time, too.  I guess all that practice I made her do helped resolve the root problem from last time (failure to zip up her backpack).

Kaitlyn just keeps rolling along with getting great grades.  Straight As again this time, and she exceeded expectations in all non-graded areas again.  On the honor roll again, too.

Of course, her report card also contained the much-anticipated comments from her teacher, and those stayed about the same, too.  “Kaitlyn is a pleasure to have in class.”  “She continues to grow.”  “We will continue to work on getting her to slow down on assignments to avoid making silly (my word, not her teacher’s) mistakes.”  Same old, same old.

There is a big change coming for Kaitlyn starting next week, but Amber and I, along with her teacher and school administration, believe that it will only help Kaitlyn continue to grow and excel.

What’s In Store?

2014

It seems like it was just yesterday that I was sitting in front of my computer screen recapping 2012, and the adventures we had.  Hard to believe that it was 365 days ago.  Hard to believe that it was countless adventures ago, way more than I could ever have hoped to share on here.

2013 was yet another adventurous year for us.  We saw our shares of ups and downs, but the one thing that Amber and I remained steadfast in is doing what we thought was best for Kaitlyn each and every day.

We had our annual follow-up with the psychologist.  Kaitlyn completed her first 5k.  There was the first of many Oscar-worthy performances.  Those are always fun.  Kaitlyn played her first season of an organized sport, T-ball.  There was, of course, our first Disney cruise, and what a “Dream” it was!

Kaitlyn turned seven this past summer, and her ocean-themed birthday party was a success.  Over the summer, she also lost her first toothSchool started back in August, and Kaitlyn was excited to start second grade; so far, second grade has been amazing, with Kaitlyn having made straight A’s in the first nine weeks (second report card coming soon!).

2014 should be an interesting year as well.  Amber and I know that there will be plenty of adventures (I could probably write something every day, but then you would get sick of reading this blog), and with the adventures, there will be plenty of highs and lows again.  While we may not know all of what is in store for 2014, we do know some of what will happen.

Soccer kicks back off shortly, and that should be entertaining.  We have our annual follow-up with the psychologist coming up in January.  Kaitlyn will be bringing home another report card in the next few weeks, too.  We will be going on our second cruise this summer, but not before our required trip to the Disney Store in Destin for some necessities for Kaitlyn.  Third grade, and all the challenges that will come along with it, will start in August (it pains me to even write that this far out because I don’t want it to get here too soon).

No matter what happens in 2014, I know that Amber will be by my side, and I know that we will continue to raise Kaitlyn our way, knowing that everything we do is with the truest intentions of making her life better.  I am thankful that Amber and I get to share these adventures together, and we are all thankful for the support of our friends and family.

Mixed Feelings

I had to take some time to digest what I heard and read before deciding to share my feelings about it.  The “it” that I am referring to is singer Susan Boyle’s recent announcement that she has been diagnosed with Asperger’s.

My initial reaction was that having another prominent person reveal the diagnosis will help continue to develop awareness of Asperger’s and autism.  I hope that I am right.

But I had another reaction, one that was unexpected, when I read the story more.  It wasn’t so much that Ms. Boyle revealed her diagnosis, it was a quote that was attributed to her.

“Now I have a clearer understanding of what’s wrong and I feel relieved and a bit more relaxed about myself.”

My issue is with Ms. Boyle referencing having something “wrong” with her.  That is a patently false statement (though I doubt that was Ms. Boyle’s intent).

Being diagnosed with Asperger’s, or any type of autism, is not a signal that something is “wrong” with a person.  I reject, and have done so continually on this blog, the notion that people like Ms. Boyle and like Kaitlyn have something wrong with them because they have Asperger’s.

Is it wrong for someone, and from here on out, I will be referring to Kaitlyn since I do not know Ms. Boyle, to be extremely bright, devoted, caring, and focused?  I don’t think so.  Does Kaitlyn sometimes drive Amber and I crazy with her obsessions (currently American Girls)?  Yes, but we embrace each obsession and are fortunate that Kaitlyn even lets us in in the first place.  Are there times where Kaitlyn amazes us with her compassion?  Absolutely; like on Thanksgiving, when we went around the table and said what we were thankful for and she led with “shelter,” making the rest of us take a step back for a second and reassess what we are thankful for, all while realizing that it may not measure up to what a seven-year old came up with off the top of her head.

I have no doubt that Ms. Boyle has faced numerous challenges in her lifetime, and she will continue to do so.  Her diagnosis will explain so much to her, and hopefully allow people to be more understanding of her.  But I can assure you that there is nothing “wrong” with her.

 

Thirst For Knowledge

I should have known that I was about to witness something that would surprise me, even though I should know better than to be surprised at pretty much anything that Kaitlyn does anymore.  But there I was, walking away shaking my head, after what Amber showed me what Kaitlyn was doing the other night.

As long as she has had a successful day (good in school, respectful at home, etc.), Kaitlyn usually gets some time after her bath to play on the computer.  Most days, she will be checking out games on the PBS site or the Disney Princess site, and will sometimes be planning our next cruise using the Disney Cruise site.  The other night, however, she was not on any of those sites.  No, she went a completely different route, and both Amber and I were shocked and proud.

Amber snuck out of our computer room to retrieve me from watching MLB Network to take a look at what Kaitlyn was doing.  She wanted me to be really quiet so that Kaitlyn did not stop what she was doing and move on to something else.  Easy enough, especially because I can move like a ninja if I have to.

When I snuck into the computer room, there was Kaitlyn, sitting on the computer, watching a video about the Civil War.  When I asked her why she was watching something about the Civil War, she flatly stated that it was “because I want to learn about it.”  Ok then.  After that, I went back to watching TV, but I decided to try to listen to see if I could hear what Kaitlyn would be doing for the rest of her time on the computer (she tends to narrate what she is doing).  Once the Civil War video was finished, she searched for one about the Revolutionary War, and she finished by watching one about the Statue of Liberty.  The child has an endless thirst for knowledge.

Like everything else she takes an interest in, Amber and I fully expect that she will quickly become an fully immersed in learning about those subjects.  It is just a matter of time before she starts quizzing us on different facts she has learned.  I can’t wait.

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